I’ve been in quite the Battle the past few weeks. My pain levels have limited my ability to complete most tasks that I do in my Daily Life. It has been quite a while since my pain has been so debilitating. I live with pain on a daily basis yet it is rare that I have pain so debilitating. Most of my trigger points have been activated and causing sore muscles and joints. It is rare for me to not be able to do my walks or to do them with my joints and my muscles in my legs bothering me so much. I always love my walks and the past couple of weeks I haven’t been able to complete them in a way that I normally do.
The issue with this when it happens day after day after day it is a struggle to keep yourself emotionally and mentally fit. My body gets so tired and worn out from the pain. At the two week point it is so hard to not just mentally and emotionally give in. I did give in for a short period of time a good cry and a bit of yelling at the wall, then I had to get back to the battle. The battle itself gets overwhelming.
Im feeling a bit better today. Trying not to overdo myself. With God in my life I have had some joy through the pain. I just try to remember how much He loves me. I know it is ironic. Why do I, or would I love and be loved by a God who has made me so sick? I don’t completely know why God has given me or others this sort of affliction. Yet what I do know is when I walk in His Love and Grace. I also realize that He loves me more than love was created to be. Knowing all of that brings me joy and helps me to want to keep fighting this dreaded Fibromyalgia. I strive to walk in His light. Like any soldier who is in battle like this we do wane in our mental and emotional state.
I am working as hard as I can to hang in there and do what is necessary in my life. It is the only way I will survive this life. Others have worse so I also do try to be grateful every day that God has spared me of so much worse things In this life.
This is an excerpt from the book; The Fatigue and Fibromyalgia Solution by Jacob Teitelbaum, M.D.
This is an amazing book and has it has helped to validate so much of what I am going through, besides the pain, with my FM as well as the Fatigue that accompanies it. The thing I like most about this book is that it isn’t written in medical ese. It is written in language that any of us lay people could understand. Okay here is the excerpt from this book on Brain Fog.
People with FMS (Fibromyalgia Syndrome) often suffer from poor short term memory and difficulty with word finding and word finding and word substitution. Sometimes you may even have to think for a moment to remember your children’s names! About one – third of people will also have rare brief episodes of disorientation lasting thirty seconds to two minutes. These most often happen when taking an exit ramp while driving or making a turn in a store aisle. It can feel frightening, but it is not dangerous and passes quickly.
Brain Fog is one of the most frustrating symptoms for some people and is often the scariest. Many people are afraid that they are developing Alzheimer’s disease. But this is not the case. A simple way to differentiate between brain fog and dementia is that with brain fog you my constantly forget where you left the keys. With Alzheimer’s disease, however you may forget to use your keys. They are not the same, and the brain fog also routinely improves.
Just these few paragraphs really helped me to understand what was happening in my Brain. I am afraid as my mother had senility form of Dementia and also had Aphasia from having small strokes. When I have some of these symptoms pop up I get so worried. This really helped me to be able to put it into perspective and to be able to realize this is part of FM not Dementia. Hope it helps someone out there as well.
If any of you suffer from Brain Fog Please leave a comment. I feel that the more we pull together the better! I know each one of us has such an individualized story yet that doesn’t mean we cannot support each other. I want to be a support for you all out there. I also know that there are other chronic pain disorders that also suffer from Brain Fog so please feel free to post here. You do not have to just have FM to post here. There are labels they try to make us live within in all the Chronic Pain issues. We are people NOT labels! Don’t get me on my Soap Box LOL!!!
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