Ten Things of Thankful

This week I am feeling Battle Weary.  Fibromyalgia is the biggest battle I have had to ever fight.  Add the stress of the Christmas Season and a Melt Down is bound to happen sooner or later. It always seems that there is an emotional hangover the next day. So that is where I am today.

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Dad and JP having Ice Cream

I have a son who is disabled and he needs full care(24/7) I am thankful for the help that JP’s Caregiver provides.  Its not enough yet I am lucky for the hours I receive. She has been with us for 3+ years.  It is the first consistent Caregiver we have ever had for JP.  I am thankful God brought her into our lives.

My Husband and my Son

My Husband and my Son

Having someone in the family with a chronic pain disorder is very hard on the spouse.  Also the children.  One day we can be perfectly fine and the next day be in so much pain we are unable to complete our Basic Living Skills.  The other thing that is really difficult is people with Fibromyalgia get what the Doctors aptly call Brain Fog.  What Brain Fog entails, short term memory loss, and a sort of aphasia.  It is something that lately has really affected me.  Of course it all rolls over to my Husband.  It affects him.  He worries about me and a lot of times he does not know what to do.  It has to be hard.  I am so so Thankful for my Husband and his faithfulness to me and our family.  I’m Thankful for how he cares for JP.  He is a special man.

My DIL and me in Hawaii day after her marrying my son.

My DIL and me in Hawaii day after her marrying my son.

I am Thankful for my DIL. She is the most amazing woman that could have come into our family.  As a child on to adulthood, I have prayed and prayed that I could have a DIL that could and would be willing to be my daughter.  Story Short she has become a very close to me and is more than just a daughter now she is a friend.  A true friend.  I Thank God for this relationship over and over and am so grateful for this blessing.

People who have Fibromyalgia seem to as a rule have more pain in the extreme cold.  For me my muscles always seem to be tight.  In the winter because of the cold they tighten further.  This causes a lot of stress on my joints.  So I have muscle pain as well as joint pain.  I am Thankful that even though I have the above pain I am still able to walk close to 4 miles three to 4 times a week.  It does help to keep my muscles a bit looser which decreases pain level to a tolerable level.  I am also Thankful for my very very close friend.  She puts up with me wherever I am and the mistakes I make. Whether Im happy or a b#*!h. She deals with my FM even though she doesn’t understand it fully.  Im so lucky. She also is my walking partner.  She gets me up and going even when I don’t feel like it.

I am Thankful for a roof over my head.  Many years ago when I went to Mexico I saw many people living out of cardboard boxes or corrugated metal leaning up against each other to form one small room.  Sand for a floor.  I was about 17 years old and it was my first experience of seeing how poor people must live.  It made me grateful very fast.

I am also Thankful that I was able to take a hot shower today.  There are those who live without running water or the homeless who do not really have any water at all.

Let me know how you are feeling this week and what you are Thankful for.

 

 

11 thoughts on “Ten Things of Thankful

  1. Hiya! *waves*
    I am so glad I saw this before I tried to sleep. I have thought about you a lot today, wondering how you are doing.
    You have a lovely family 🙂 It’s good to see a pic of you too. (((hugs)))
    Today I have been thankful for – The sunshine in December. I didn’t get out in it, but it made me smile.
    My best friend who keeps me company via text every day, makes me laugh, cheers me on and gives me a kick up the bum if I need it.
    My daughters’ boyfriends. They are both good hearted, hard working young men who make my girls happy.
    My cats, who are always a joy.
    My favourite box of chocolates. I have one and I am slowly nomming my way through the gooey chocolate goodness 😀
    New friends on WordPress 😀
    Xxx

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    • You are so sweet. I am glad i posted before your bedtime as well. Im sorry if you were worried. I am hoping our Pastor will say something tomorrow that will make sense and help me to feel better. It happens quite a bit.

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  2. This week I am thankful that my doctor finally took me seriously (or his medical student did) and ordered the necessary tests to discover a very dangerous situation (100% blocked pancreatic bile duct) which we hope has been corrected by the ERCP procedure, sphincterotomy, and stent placement. Even though I still feel very weak and pained from the procedure, I am thankful that I appear to have avoided the most dangerous risks from this procedure. I am eternally thankful for my loving family who always take care of me during these difficult times. I don’t know what I would ever do without them and cannot fathom the day when they are no longer with me. I am thankful for so many blessings and answered prayers. 💜

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  3. Oh, I am newly fighting this battle too, although I think I’ve been fighting it longer than the doctors are saying. I’m trying to learn everything I can about it because I’ve never had limitations, and I am mentally refusing to accept them, which is causing the meltdowns and depression. I don’t know what is worse: the physical or mental. I am thankful for my support group, here and off of the computer. I really don’t know where I’d be without them. Probably 6 feet under, honestly. I am thankful for people like you who share firsthand experiences about it and show me I’m not alone in this. I am thankful for my kids and my boyfriend because I know I have to be driving them mad by now, but they consistently stay by my side. I am also thankful for all of my true friends (they get weeded out so quickly when something bad happens, especially when it is invisible) for sticking by me no matter if I’m crying and speaking incoherently or I’m happy and pushing myself to my limit. I’m also thankful for my ex mother in law because that woman has just been amazing and I love her so much; she has become one of my best friends the last few years. And I’m genuinely thankful for my doctor who has stuck by me when no other would. This was a good thing to have us post. I feel better already. Thank you!!

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    • You are so welcome! Glad you posted your thing you are thankful for. I think for me the hardest things to learn is to stop before i hit the wall and pacing myself. Im glad you are reading yet please do not stay in denial about what you have or that there may be a few things you cannot do anymore. This is some of the reason you are crashing and burning Find a good FM specialist they will help you to understand you are not crazy that these things are real.

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      • I’m on a hunt now. There are only a handful here but I’m one of those who will travel if need be. I’ve just got to accept the limitations and its so hard to do! I feel like if I say okay…I can’t do this anymore, then I’ve given up. But in time I’ll be okay. All things take time and support, which I’m seeing a lot of here. Thank you!

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  4. Thanks for sharing this it was very uplifting.
    my daughter inlaw has cerable palsy and when she lived with us at times it could be very trying, she now has her own place and we visit when we are in town.
    it will be har buttryto remember there is hope yet evenin the most devastating times.

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